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New Parent to Parent
Service
Parent Volunteers,
parents with children who have Colitis or Crohn’s Disease,
have been trained to talk with other parents in a similar
situation. A telephone appointment can be made through the
Information Service 0845 130 2233 to talk to a Parent
Volunteer. Any parent with a child who is still at school or
still under paediatric care can use this service. |
 Support for parents is offered by trained NACC
volunteers who themselves have ‘been there’ and really understand what
it is like to have a child with IBD.
Parent to Parent offers the chance to talk to
a parent volunteer in confidence on the phone. Appointments can be
booked by phoning the Information Line on 0845 130 2233.
Parent to Parent telephone appointments are available to parents of children of school age
or being cared for by a paediatric gastroenterologist.
Smilie’s is a UK wide network which focuses
on the difficulties experienced by children who have IBD and their
families and gives them the opportunity to develop informal mutual
support.
 Smilie's Network Group website
Family Days. NACC Groups around the country put on a couple of
events each year for families in different parts of the country. Contact
the Group and Volunteer Development Team at the NACC office for
information.
Information Sheets. Many of NACC’s
information sheets have information that
you may find helpful, but certain ones have been written specifically to
assist parents or older children. For more individual enquiries
the NACC Information Line (0845 130 2233) is available.
IBD in Childhood
Caring for a Child with IBD: a Parent's Guide
IBD
Concerns for Young People
Children and young people with IBD: a guide for schools
Claiming
Disability Living Allowance (for children under 16)
Measles virus, MMR vaccine and IBD
Transition Guides
Guides for parents, young people and health professionals on transition
from children’s to adult gastroenterology services, based on the
national guidance prepared by a working group of patients and health
professional organisations are available at
www.ibdtransition.org.uk
Family Information Packs
Family Information Packs, provided by NACC, are distributed by hospitals
to families when a child is diagnosed with IBD.
School Trip Medical Needs Information
NACC has developed a document that can be adapted and completed by parents to give
to teachers who are organising a school trip. Please
click here to download the document.
NACC Personal Grants
Families on low incomes and in financial need as a
result of IBD are eligible to apply for a
NACC Personal Grant.
Other NACC Services
Information
Service. 10am to 1pm Monday to Friday. 0845 130 2233
NACC-in-Contact
Confidential telephone support line. 0845 130 3344
DLA
Support Service. Book appointments through the Information Line
Other sources of information and support
Contact-a-Family
Crohn's
in Childhood Research Association (CICRA)
Ileostomy and Internal Pouch Support Group (IA)
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