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Parent to Parent offers the chance to talk to a parent volunteer in confidence on the phone. Appointments can be booked by phoning the Information Line on 0845 130 2233. Parent to Parent telephone appointments are available to parents of children up to and including the age of 21. Smilie’s is a UK wide network which focuses on the difficulties experienced by children who have IBD and their families and gives them the opportunity to develop informal mutual support.
Family Days. NACC Groups around the country put on a couple of events each year for families in different parts of the country. Contact the Group and Volunteer Development Team at the NACC office for information. Booklets and Information Sheets. The booklet IBD in Children: a parent’s guide is now available from NACC. Many of NACC’s information sheets have information that you may find helpful. Several have been written specifically to assist parents or older children, and are listed below. For more individual enquiries, contact the NACC Information Service (0845 130 2233).
Transition Guides Guides for parents, young people and health professionals on transition from children’s to adult gastroenterology services, based on the national guidance prepared by a working group of patients and health professional organisations are available at www.ibdtransition.org.uk Family Information Packs Family Information Packs, provided by NACC, are distributed by hospitals to families when a child is diagnosed with IBD. School Trip Medical Needs Information NACC has developed a document that can be adapted and completed by parents to give to teachers who are organising a school trip. Please click here to download the document. NACC Personal Grants Families on low incomes and in financial need as a result of IBD are eligible to apply for a NACC Personal Grant. Other NACC Services
Other sources of information and support |
Crohn’s and Colitis UK is the working name for The National Association
for Colitis and Crohn’s Disease (NACC) | |
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express written consent
Support for parents is offered by trained NACC
volunteers who themselves have ‘been there’ and really understand what
it is like to have a child with IBD.
