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Children and Parents

New Parent to Parent Service

Parent Volunteers, parents with children who have Colitis or Crohn’s Disease, have been trained to talk with other parents in a similar situation. A telephone appointment can be made through the Information Service 0845 130 2233 to talk to a Parent Volunteer. Any parent with a child who is still at school or still under paediatric care can use this service.

 

A mum and sonSupport for parents is offered by trained NACC volunteers who themselves have ‘been there’ and really understand what it is like to have a child with IBD.

Parent to Parent offers the chance to talk to a parent volunteer in confidence on the phone. Appointments can be booked by phoning the Information Line on 0845 130 2233.

Parent to Parent telephone appointments are available to parents of children of school age or being cared for by a paediatric gastroenterologist.

Smilie’s is a UK wide network which focuses on the difficulties experienced by children who have IBD and their families and gives them the opportunity to develop informal mutual support.

-Smilie's Network Group website
 

Family Days.  NACC Groups around the country put on a couple of events each year for families in different parts of the country. Contact the Group and Volunteer Development Team at the NACC office for information.

Information Sheets.  Many of NACC’s information sheets have information that you may find helpful, but certain ones have been written specifically to assist parents or older children.  For more individual enquiries the NACC Information Line (0845 130 2233) is available.

-IBD in Childhood

-Caring for a Child with IBD: a Parent's Guide

-IBD Concerns for Young People

-Children and young people with IBD: a guide for schools

-Claiming Disability Living Allowance (for children under 16)

-Measles virus, MMR vaccine and IBD
 

Transition Guides

Guides for parents, young people and health professionals on transition from children’s to adult gastroenterology services, based on the national guidance prepared by a working group of patients and health professional organisations are available at www.ibdtransition.org.uk

Family Information Packs

Family Information Packs, provided by NACC, are distributed by hospitals to families when a child is diagnosed with IBD.

School Trip Medical Needs Information

NACC has developed a document that can be adapted and completed by parents to give to teachers who are organising a school trip. Please click here to download the document.

NACC Personal Grants

Families on low incomes and in financial need as a result of IBD are eligible to apply for a NACC Personal Grant.

Other NACC Services

-Information Service. 10am to 1pm Monday to Friday. 0845 130 2233

-NACC-in-Contact Confidential telephone support line. 0845 130 3344

-DLA Support Service. Book appointments through the Information Line
 

Other sources of information and support

-Contact-a-Family

-Crohn's in Childhood Research Association (CICRA)

-Ileostomy and Internal Pouch Support Group (IA)
 

Quick Links on this page:

-Previous page

-Smilie's Network Information

-Info: Caring for a Child with IBD

-Info: DLA for Children

-Info: IBD & Young People

-Info: IBD in Childhood

-Info: Teachers can help

-Information Sheets

-Link to Contact a Family

-Link to Crohn's in Childhood...

-Link to Ileostomy & Internal Pouch Support Association

-Link to Smilie's People

-Welfare Fund

Welcome to the NACC website
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Charity registered in Scotland Number SC038632
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