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Other useful
UK organisations sorted alphabetically by Name
Action on Pain |
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20 Necton Road, Little Dunham, Norfolk, PE32 2DN PainLine: 0845 603 1593 (lo-call rate)
Tel/fax: 01760 725 993 (standard rate) E-mail: info@action-on-pain.co.uk Website: www.action-on-pain.co.uk Support service for patients and their relatives with chronic pain
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Arthritis Care |
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18 Stephenson Way, London, NW1 2HD Tel: 020 7380 6500
Fax: 020 7380 6505
Helpline: 0808 800 4050 (freephone) Mon-Fri - 10am - 4pm E-mail: helplines@arthritiscare.org.uk Website: www.arthritiscare.org.uk Local groups; Home visiting scheme; Magazine; Leaflets & booklets; Holiday service; Information.
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Benefit Enquiry Line (disability benefits) at Department for Work and Pensions |
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Helpline; 0800 882 200 (freephone) For general advice or information about benefits for "disabled" people
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Bladder and Bowel Foundation (B&BF)
(Formerly Incontact and Continence Foundation) |
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SATRA Innovation Park, Rockingham Road, Kettering, Northants, NN16 9JH Nurse helpline: 0845 345 0165
Counsellor helpline: 0870 770 3246
General Enquiries: 01536 533255 E-mail: info@bladderandbowelfoundation.org Website: www.bladderandbowelfoundation.org Provides information and support for all types of bladder and bowel related problems.
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British Association for Counselling and Psychotherapy |
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BACP House, 15 St John’s Business Park, Lutterworth, Leicestershire, LE17 4HB Tel: 0870 443 5252
Fax: 0870 443 5161 E-mail: bacp@bacp.co.uk Website: www.bacp.co.uk
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British Liver Trust |
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2 Southampton Road, Ringwood, BH24 1HY Tel: 0870 770 8028
Fax: 01425 481335
Helpline: 0800 652 7330 Website: www.britishlivertrust.org.uk
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Cancerbackup has merged with Macmillan Cancer Support |
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3 Bath Place, Rivington Street, London, EC2A 3JR Helpline: 0808 800 1234 (freephone)
or 020 7739 2280 (standard rate) Mon-Fri 9am-8pm Website: www.cancerbackup.org.uk Cancerbackup's trained nurses will answer any questions or worries you may have about cancer
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Coeliac UK |
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3rd Floor, Apollo Centre, Desborough Road, High Wycombe, Bucks, HP11 2QW Tel: 01494 437278
Fax: 01494 474349
Helpline: 0870 444 8804 Mon-Fri 10am-4pm E-mail: admin@coeliac.org.uk Website: www.coeliac.org.uk Coeliac UK is a charity supporting people with gluten intolerance
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Contact a Family |
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209-211 City Road, London, EC1V 1JN Tel: 020 7608 8700
Fax: 020 7608 8701
Helpline: 0808 808 3555 Mon-Fri 10am-4pm, Mon also 5.30pm-7.30pm E-mail: info@cafamily.org.uk Website: www.cafamily.org.uk Contact a Family provides support and advice to parents whatever the medical condition of their child
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CORE (formerly known as Digestive Disorders Foundation) - Fighting Gut and Liver Disease |
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3 St Andrew’s Place, Regents Park, London, NW1 4LB E-mail: info@corecharity.org.uk Website: www.corecharity.org.uk CORE issue booklets and leaflets to help you understand the whole digestive system ie Diverticulitis, Gall stones etc. Please send SAE
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Crohn's in Childhood Research Association (CICRA) |
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Parkgate House, 356 West Barnes Lane, Motspur Park, Surrey, KT3 6NB Tel: 020 8949 6209
Fax: 020 8942 2044 E-mail: support@cicra.org Website: www.cicra.org
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Diabetes UK |
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Macleod House, 10 Parkway, London, NW1 7AA Careline: 0845 120 2960 (lo-call rate) (Mon-Fri 9am-5pm)
or 020 7424 1000 (standard rate)
Fax: 020 7424 1001 E-mail: careline@diabetes.org.uk Website: www.diabetes.org.uk
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IA (The Ileostomy and Internal Pouch Support Group) |
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Peverill House, 1-5 Mill Road, Ballyclare, Co Antrim, BT39 9DR Tel: 0800 018 4724 or 028 9334 4043
Fax: 028 9332 4606 E-mail: info@iasupport.org Website: www.iasupport.org Young IA: www.youngia.org.uk
co-ordinator: Peter Laflin - Email: peter.laflin@the-ia.org.uk Tel: 0800 018 4724
The IA give advice to anyone who has an ostomy. They are also happy to visit people in their own homes to offer counselling
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National Ankylosing Spondylitis Society |
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Unit 0.2, One Victoria Villas, Richmond, Surrey, TW9 2GW Tel: 020 8948 9117
Fax: 020 8940 7736 E-mail: nass@nass.co.uk Website: www.nass.co.uk Ankylosing spondilitis is a rheumatic disease that affects the spine, and can also affect the joints of the limbs and tissues in other parts of the body. It occurs in up to 15% of patients with IBD
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National Osteoporosis Society |
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Manor Farm, Skinners Hall, Bath, BA2 0PJ Tel: 01761 471 771 (Mon-Fri 10am-4pm)
Helpline: 0845 450 0230 (Mon-Fri 10am-3pm)
Fax: 01761 471 104 E-mail: info@nos.org.uk Website: www.nos.org.uk Local group support and advice
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Outsiders - Sex and Disability (formerly known as Sexual Problems of Disabled People (SPOD)) |
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Tel: 0707 499 3527 (weekdys 11am-7pm) Website: www.outsiders.org.uk
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Pain Concern |
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1 Civic Square, Tranent, EH33 1LH 01875 614537
Fax: 01875 614505
Helpline: 0844 499 4676 - Mon-Fri 10am-4pm E-mail: painconcern@btinternet.com Website: www.painconcern.org.uk Information and support for pain sufferers and those who care for them and about them.
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The Gut Trust (formally known as Irritable Bowel Syndrome Network) |
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Unit 5, 53 Mowbray Street, Sheffield, S3 8EN Helpline: 0114 272 3253 (weekdays 6-8pm Saturdays 10am-12 noon) E-mail: info@theguttrust.org Website: www.theguttrust.org The Gut Trust (formally known as the IBS Network) is an independent, self help organisation run by people with IBS. The helpline is staffed by qualified nurses who specialise in IBS
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The Royal Association for Disability and Rehabilitation (RADAR) |
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National Key Scheme, 12 City Forum, 250 City Road, London, EC1V 8AF Tel: 020 7250 3222 (Mon-Fri 9am-5pm)
Fax: 020 7250 0212 E-mail: radar@radar.org.uk Website: www.radar.org.uk RADAR runs a National Key Scheme which allows people to access specially adapted toilets which are kept locked to avoid vandalism. RADAR can provide a key at a cost of £3.50 on declaration of disability and a guide to toilets is available for £5
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The Steroid Aid Group (Self help group for patients) |
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5 Wessex Court, Tennyson Road, Worthing, West Sussex, BN11 4BP
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 Previous page
Link to Action on Pain
Link to Arthritis Care
Link to BACP
Link to Bladder and Bowel Foundation
Link to British Liver Trust
Link to Cancerbackup
Link to Coeliac UK
Link to Colostomy Association
Link to Contact a Family
Link to CORE
Link to Crohn's in Childhood Research...
Link to Diabetes UK
Link to Ileostomy & Internal Pouch...
Link to National Ankylosing Spondylitis...
Link to National Osteoporosis Society
Link to Outsiders
Link to Pain Concern
Link to PromoCon
Link to The Gut Trust
Link to The Royal Association for Disability...
Link to Young IA
Worldwide IBD Organisations
Crohn’s and Colitis UK is the working name for The National Association
for Colitis and Crohn’s Disease (NACC)
Charity registered in England Number 1117148
Charity registered in
Scotland Number SC038632
A company limited by guarantee in England:
company number 5973370
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