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PATIENT PANEL OVERVIEW MAY 2007
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Comments on Patient Panels
Elaine Steven Chair NACC
NACC Patient Panels have proven
themselves, in a relatively short space of time, to be a
great success. Their achievements have shown that by working
in partnership with local health professionals, with each
listening to the other, small numbers of committed patients
can make a difference to the service offered to all; the
improvements or changes brought about do not have to be
great or expensive to make an impact on a patients` personal
experience of their local IBD service. The panels have
taught us that often what health professionals believed to
be of concern to patients, and therefore to them, was in
fact not so and that something else was of greater concern;
this kind of dialogue and raised understanding of patients
needs should also be viewed as an achievement.
Each panels` strength lies in its
uniqueness and diversity coupled with the ability to
influence its own particular local IBD service; it is for
this reason that NACC hopes to see more patient panels
develop in the future; using the partnership approach to
make that vital difference!
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Comments on Patient Panels
Peter Canham NACC Patient Involvement Advisor
From a pilot project to a mainstream
NACC activity in just two years! Each Patient Panel is
different reflecting a wide diversity of volunteers and the
unique environments they all work in. In their different
ways each Patient Panel has been a huge success, although
some have set their sights higher than others and some have
worked in more favourable circumstances all have their own
achievements of which they can justifiably be very proud. |
The
NACC Plan for 2005-2008 states that ‘We will …. support the development
of patient panels or other initiatives through which people affected by
Colitis and Crohn’s Disease and the professionals involved in their care
can exchange ideas on how local services for IBD can best be developed’
Summary Background
NACC Patient Panels – What are they?
 IBD
Patient Panels are an initiative supported by the National Association
for Colitis and Crohn’s Disease (NACC) which has been running since
early in 2005. There are several pilots established around the country –
all working in slightly different ways, depending on their local
circumstances.
However
the aims of all pilots are the same - to improve local IBD services by
providing suggestions, feedback and ideas from people and carers of
people who have Colitis or Crohn’s disease.
All
the pilots work closely with NHS professionals and their local IBD
departments to achieve these aims.
It
is hoped that the work of these pilots will help raise awareness of
Colitis and Crohn’s disease.
It
is also hoped that by participating on these panels that the members
will have a greater understanding of how the NHS works and how to make
the most of the opportunities that exist within the NHS for greater
Patient and Public Involvement.
Panel
members will have the opportunity to develop their meeting and
presentation skills through the work of the panel.
Essential
to both – good local liaison between Groups and Patient Panels -
particularly where they exist in the same area
Panel Established
First formal Patient Panel was set up in 2005 –
there are now 10
Panel Aims
Review
Local Services and make positive suggestions for improvement/development
Raise
awareness of Colitis and Crohn’s Disease
Develop
the skills, knowledge and experience of panel members
Work
in partnership with local NACC Group and Health Care Professionals to
improve services
Panel Key Relationships
IBD Team – gastroenterologist, surgeon, IBD Nurse
Local NACC Group
Local NHS patient involvement groups
Local NHS Trusts
NACC Patient Involvement Adviser
Patient Panel Participants
Anyone who receives IBD services (and/or their
carers) from their local hospital
Patient Panel Catchment Area
That of the local hospital from which IBD services
are delivered
NACC Support for Patient Panels
Support
from NACC Patient Involvement Advisor including help to get established
Small
budget for expenses
Guidance
on specific issues as they arise
National
support on specific issues if they have broader significance
Networking
opportunities with other NACC Panels
Resources/
information on NACC website
Panel can legitimately speak on behalf of
IBD
patients and professionals involved in the Panel activities
NACC
local view in response to health service issues/consultations
Different Models of Patient Panels
All Patient Panels are different, evolving as they
do to their unique local circumstances. This is not an attempt to show
that one type of model works better than others.
There does appear to be three distinct models of
Patient Panel emerging:
1. Professionally initiated and
professionally lead - but with patient participation in the decision
making
2. Patient initiated and patient lead - but
with close liaison with the local IBD Health Service Team
3. A campaigning Patient Panel arising from a
threat to local services eg reduction in IBD nursing hours - but can
develop into a more traditional model when campaigning issue is over
State of Play – existing Panels
Bradford:
Royal Infirmary
Brighton:
Royal Sussex County Hospital
East Kent Acute Trust
Leicester:
General Hospital
Liverpool: Royal University Hospital
North Cumbria Acute Hospitals
Nottingham:
QMC
Plymouth Hospitals
Salford:
Hope Hospital
Wigan:
Royal Albert Resource and Contact Person Summary
NACC can offer financial assistance to support the work of Patient
Panels and can offer a resource pack which includes publicity materials
for the launch of a Panel and other promotional material. NACC can also
provide advice and support to individuals wishing to run a Patient Panel
Enquiries about patient panels should be made to Peter Canham, NACC
Patient Involvement Adviser
Links to Resources
Jargon Buster: NHS Acronyms and abbreviations:
www.nlpct.nhs.uk/localservices/html_files/glossary.htm
(thanks to North Lincolnshire PCT)
Posters and PowerPoint Presentations:
Sample Poster 1 - Open as
Word Document File or
PDF
File
Sample Poster 2 - Open as
Word Document File or
PDF
File
Sample Poster 3 - Open as
Word Document File or
PDF
File
Get Your Voice Heard Announcement - Open as
Word Document File or
PDF
File
Sample Letter to your Medical Advisor - Open as
Word Document File or
PDF
File
PowerPoint Presentation on Patient Panels - Open
as
PowerPoint Presentation File or
PDF
File
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